Owls and Orchids

Image courtesy of Facebook

“Dare to dream! If you did not have the capability to make your wildest wishes come true, your mind would not have the capacity to conjure such ideas in the first place. There is no limitation on what you can potentially achieve, except for the limitation you choose to impose on your own imagination. What you believe to be possible will always come to pass – to the extent that you deem it possible. It really is as simple as that.”
― Anthon St. Maarten

It seems like a tired old story, doesn’t it? I mean, really, how many people are blogging about their illness or how they are managing it? Is it some, a lot, or too many? Hmm. Perhaps that means there are a lot of sick people out there and they need to be heard in one way or another.

Each person has some kind of tether attached to them, whether it be an abusive relationship, family problems or stress. Whether that stress is overwork or the actual job causing the stress, or simply the pressure of being the penultimate person in life, can find themselves in a situation where their body shouts ENOUGH! If that happens, when that happens, they may find themselves with a Chronic Illness.

Our bodies are incredible organisms which can do remarkable things. We have sent our bodies to the moon and back. We have climbed the highest mountain on Earth, Mount Everest (8,848m) in the Himalayas. We have sent them down into the deepest parts of the ocean. The Challenger Deep in the Marianna Trench was first explored by Jacques Piccard and Don Walsh in the Trieste bathyscaphe in 1960. They reached a depth of 10,916 meters. We can train to become incredible athletes and we can bring life into the world. We can, unfortunately take life out of the world also in too many wars.

image from http://www.petera.se The inimitable Mount Everest

We ask our bodies each and every day to do things they may not yet have evolved enough to do, but the pace of technological advancement means we need to force our bodies to do more to keep up. We have even “beaten” to a smaller or lesser degree most of the illnesses which have killed us in the past. The problem is, we have also created a host of new ones to take their place, some by accident and some by design.

Each and every action we ask our bodies and our minds to do can lead to the organism’s failure. It may lead to our body yelling ENOUGH! If this happens, or when this happens, it may be a minor or major catastrophe.

image from http://www.shutterstock.com –

It may be as simple as an overwhelming fatigue which can be put to rights by a good long vacation.

It may be a ‘breakdown’ which requires much longer away from work to address the issues.

It may also be an insidious invader which slowly sucks the life out of you until it is impossible to ignore. At that point you have your “Chronic Illness”.

Unfortunately there are far too many people who, when faced with a spouse, family member, friend or co-worker with a chronic illness cannot cope with even acknowledging human frailty. The only way I can describe it is that they cannot face their own possible frailty, or their own possible mortality.

image from halsamt.wordpress.com

I have seen and worked with people who have turned and walked away from loved ones because they cannot deal with illness. Ultimately, their inability to deal with the situation is reduced to one thing – fear. Fear of becoming ill themselves, of dealing with the illness, fear of being tied down because of someone else’s illness. Whatever the final key element is, it is based on fear.

I saw it many times. Saw the illnesses, saw the injured, infirm, the helpless and counseled both sides of the equation. So one would think that when faced with the same situation I would have been prepared for whatever life had to throw at me. I know I did and I was wrong. I was so wrong that it took a decade of things slowly falling apart, one illness after another, one trauma after another and down some deep well inside I kept pushing all the pain and hurt, the fear and anger deep inside and capped that well.

My mother and my children kept me anchored to my life. They provided me with the lifeline I needed to convince myself that I had everything under control. That was when my husband learned we had been told that my mother was terminally ill. Then my personal volcano started to rumble. When I stepped up to the plate to look after Mum, he decided he’d had enough and left. My volcano really started to rumble and smoke.

image from nevsepic.com.ua

Her passing was a body blow and things escalated. No-one seemed to know. They didn’t appear to see the signs of strain, or stress, or perhaps they didn’t care. They may have been too caught up in their own dramas at that point. So I tried to cap my well once more but the cracks were already there. As the saying goes, “I soldiered on” but I could feel my hold on everything slowly slipping.

I even made an escape run by going to the Middle East. I’m still not sure if I intended being able to return from that trip. Nothing fazed me at that point. No careless act was beyond the devil may care attitude I portrayed. Yet my turn had not yet arrived and I did return and for a short time it appeared as if I had managed to shore up the weakened foundations of my well and life progressed.

That was until the dramas began again, different ones but with the same stress load. I struggled to hide it. I tried to deny it. It was no use. The volcano was not going to be denied this time. Slowly and then more quickly the volcano erupted as I morphed from fit and healthy to something akin to a helpless worm. My self-esteem plummeted and my desire to fight all but eliminated. I had a small flicker of light burning far in the distance, my children and my new husband.

image from tinyhappyfarm.blogspot.com

My guilt knew no bounds. I was caught on the horns of a giant dilemma, succumb or keep struggling with this “Chronic Illness” rubbish I was bombarded with each time I saw my doctor. (Primary Care Physician for my US friends). Me, a medical research sponge, needing to know all the ins and outs of everything, prognosis, treatment, end results, could not find the damned answer.

When I was finally told I had Lyme disease I was unsure if I was relieved or not. It did not feel right and after 12 months of the most putrid antibiotics I have ever had, it was decided I didn’t have it after all. I dread to think what it has done to my body. One simple test, always done at the beginning of Lyme testing had not been done. If it had I could have saved those 12 months and perhaps started to feel better.

But wishes are only granted in fairy tales and life moves on. The results when they arrived back have turned my life upside down. Yes, it’s still a Chronic Illness, but one with far reaching ramifications, and not just for me. At the moment the volcano is still running hot, the lava is destroying thoughts and ideas and new ones have yet to be made to replace them. I need to get a handle on this monster and beard the dragon in his lair.
I need time and yet time is not a resource I have in abundance. Decisions to be made and plans to make and I’m swimming against the tide, no small feat when I can’t swim.

image from cybershamans.blogspot.com

So I ask you, the ill and infirm, those with Chronic Illnesses, the fit and healthy, I ask everyone, to be aware of the little acts you do, be aware of how much difference a small gesture can make to someone who is ill. If you are ill, learn to take pride in the fact that you CAN ask for help. If it is turned down, it is their failing; not yours. If we want our world free from illness, we need to start by understanding its ways. We need to want to beat the monster at its own game. We can, but not alone. We all need to care and work together.

Those who don’t care, do they deserve our sympathy when they crash and burn? I have no answer yet. I try each day to send love and healing, gratitude and thankfulness out into the world, even now. Perhaps it is more important now. I know there is a question within this tale and in time I will be able to answer it, but only after I have accepted it fully.

image from chronicillnessmemes.tumblr.com

Chronic Illness is not catching, but it is lonely and isolating. Please, if you remember nothing else, I ask that you remember this.

Blessings, Susan ♥

© Susan Jamieson 2014