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Posts Tagged ‘pain’

#Life'sWoundings

Life can tear you apart

“The only way that we can live, is if we grow. The only way that we can grow is if we change. The only way that we can change is if we learn. The only way we can learn is if we are exposed. And the only way that we can become exposed is if we throw ourselves out into the open. Do it. Throw yourself.”
C. JoyBell C.

Life is not always peaches and cream, or so I’ve found. Things happen, for which you are totally unprepared, and in the process you can feel exposed, vulnerable and disenfranchised.

In my opinion, there is nothing more undermining than to be “called to account” for something which was alleged to happen, and for which you are not given the right to respond. It is especially onerous, in my opinion, if this tramples an area where you may be vulnerable, and even more so if the person who is mentoring that group drops the ball.

We go through life learning as we stumble along. We make friends, meet partners, have families, make and lose workmates, the death of family and friends, the list goes on. Along the way there is the possibility we may ‘suffer’ what has been termed “Wounding’s”.

To clarify, in this instance, a wounding is a life event which has traumatised you in some way. It’s not very difficult to find, a divorce, death of family or friend, abusive relationship etc.

#Life'sWounding

Growth is often painful

Some of us bounce back with ease. Some however, do not and hold this wounding inside, so tightly, it cannot find a way out. We cannot let it go, cannot grieve over the situation, because we have never felt safe enough to talk about the ‘incident’. If we finally feel we are in a place, safe enough for us to ‘share’ our story, we can be taken unawares by thoughtless judgement. This can be especially so, if both persons shared their ‘story’…

Long ago I recall being told that, it was of paramount importance to hear both sides of a story, before making a decision, as to what needed to be done in response. I have never forgotten the advice. I also believe that anyone who decides to ‘complain’ about another person, they should be willing to confront that person with their complaint. This seems to cause many complaints to be retracted.

I too, have had a “Great Wounding” which left me so traumatised I could not talk about it for many years. To this day I shy away from discussing it. However, I was recently in a place where a select group was gathered. Each person I interacted with in the first couple of days seemed to have their own story behind them, as we all do. After listening to someone discuss their situation I, unfortunately, shared some of my own “Wounding.”

#Life'sWoundings

The art of listening.

I was more than dumbfounded, when, as we made our way back into the meeting room I was taken to one side and informed I had “Inappropriately Shared” something. “People had complained”. I was temporarily unable to think, or speak as shock set in. To say I felt that I should leave and return home – more than crossed my mind. “Who, I wondered”. “What could I have said which was ‘Inappropriate’?” Then, No, why should I be forced away?

I remained, though it did mar my time there. To feel that every word, act or nuance, needed to be weighed and measured, made for an uncomfortable situation. I had only worked with a couple of people at that point, and the opportunity to speak with people only in a group situation apart from that, so the list of people who could have complained was small.

Is it worth remembering? Only the lessons. The lessons of forgiveness and compassion.

 

#Life'sWoundings

It is much sweeter to forgive than condemn

“Forgive but do not forget, or you will be hurt again. Forgiving changes the perspectives. Forgetting loses the lesson.”
Paulo Coelho

The incident, onerous enough by itself has embedded itself into the original “Wounding”. Being singled out later, in group, as an example of one who had come there with a “Great Wounding” in their past, did not help. I will continue, alone, to try to reconcile this “Wounding” from my past, finding compassion for those who behaved in this way. There will never be another discussion about it.

As for what happened in a group of my peers:

I forgive the pettiness of the person who felt the need to complain, even though they lacked the moral fibre to speak directly to me…. despite sharing their own story, and, If I was talking with them, and they preferred not to.

I forgive being spoken to in the manner and place I was. Leadership dictates such a discussion be private, or so I have been taught.

I forgive being used as an object lesson for the group…. Without giving permission to discuss my personal affairs before anyone else, and when there were other people there, who were also said to have shared their “Great Wounding’s”. I am still confused by exactly what constituted “Inappropriately sharing”, but the time to talk about that has passed.

#Life'sWoundings

The Secret of Life?

Lessons in Life arrive when we least expect them and often in ways we wish were different. I may not have liked this lesson, or lessons, but I can and will learn from them I already have learned from them.

I trust that if I am the person someone approaches with a “Great Wounding” and a need to share, that I have the grace and compassion to listen with as much understanding as possible.

I hope that I can recognise the privilege shown to me, that they feel safe enough to discuss something which may have devastated their life.

Finally, I pray, that if I ever have a situation in which I am uncomfortable or do not wish to be a part of, that I have the moral fibre to speak to that person myself. Showing them the dignity and respect they deserve and not behaving like a school child tattling on another.

 

#Life'sWoundings

Forgiveness, the lesson of life.

“Life will break you. Nobody can protect you from that, and living alone won’t either, for solitude will also break you with its yearning. You have to love. You have to feel. It is the reason you are here on earth. You are here to risk your heart. You are here to be swallowed up.”
― Louise Erdrich, The Painted Drum

It has been a time of much learning from many lessons.

 

Blessings, Susan ♥

© Susan Jamieson, 2014

 

 

 

Images courtesy of:-

http://www.avani-mehta.com : wordsofbalance.com:  http://www.pinterest.com http://www.searchquotes.com: encwor.blogspot.com

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The world is reduced

Down to the smallest point

To the most infinitesimal

Never before imagined

Smallest point

Comprehension is stifled

That such a tiny focus

Could take so much effort

Could release so much feeling

The world has ceased to expand

To whirl on its forever axis

Except within this focus

An unimaginable focus

Lasting eternity

Each moment in time

An eternity of pain

An insignificant word

Describing such torment

The mind shrinks from such thought

Refuses to accept the enormity

Declines the reality of existence

Silent shrieks reverberate

Inside a thorny crown

Release, please sweet release

Let me sink once more

Into a sweet oblivion

To the edge of reality

Where for a short time at least

Awareness cannot enter

Pain cannot intrude

Until once more the clock ticks

And the world comes crashing back

With an agony previously unknown

How can mere words describe

The white hot lancing hooks

Shredding flesh and bone and nerve

Piercing deep into the mind

Until sweet nothingness returns

As consciousness leaves

Wailing in retreat

For sweet surcease

Please

No

More

Reality

I beg you

© Susan Jamieson 2014

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“The purpose of government is to enable the people of a nation to live in safety and happiness. Government exists for the interests of the governed, not for the governors.”
Thomas Jefferson

What a lot of Hokum for We The People.

~~~~~

I had originally decided to do a short blog and call it ‘The Spirit is willing but the flesh is Weak”. Yet the more I thought about it the more I realised it simply was a hoax. Most importantly I was simply fooling myself. It sounds so pathetic to continually say, “It’s been a bad week” or “I’ve had a rough couple of days” or any number of other platitudes.

That’s not to say that they aren’t true, it’s just that I’m tired of using the same statements as if I trot out one after the other when things are… challenging. I’m not sure quite where I am on this sliding spectrum which I use to gauge how well I’m travelling. Truthfully, I’m feeling more than a little sick and tired with being sick and tired and not really knowing if I’m on the right track.

For so long I dragged myself to the doctors and presented the same old symptoms, tiredness, aches in joints and muscles, my motivation slowly drained away as it became more and more difficult to do things. I’m a perfectionist. I’m also a control freak. I like things to be neat and tidy. I can find nothing wrong with being able to tell anyone exactly where to go to find anything they need in my home. At least I could do that a couple of years ago.

There are my detractors who accused me of OCD, but heck, at least I didn’t need to upend my home to locate a letter I need. I revel in my individuality and I don’t expect anyone else to follow suit – each to his own.

#What a lot of Hokum

image from frommylivingroom.blogspot.com                                      Everything in it’s pace and a place for everything.

Then I was told about Lyme disease. It seemed to fit so many of the anomalies in the symptoms I had. The medication protocols are – unpleasant. If Fibromyalgia causes Brain fog then Lyme – its co-infections and the medication to ‘treat’ it definitely increases it exponentially. But I’m no quitter. I’ve gone through the protocols, dragged myself in ever decreasing circles of confusion and despair trying to determine if I’m simply grasping at straws. And I’m still not finished.

I’ve blogged about it because I’ve struggled to find support groups or people who are willing to share information. How odd. Here is a disease the AMA refuse to accept is in Australia, penalise doctors who treat it and we cannot find anyone to give us recommendations to people who are helping the ‘sufferers’. Those who find these people, usually friends, or friends or friends, keep that information to themselves. Why? Is getting well to be a hoarded treasure? Bygone days of the privileged living and the disadvantaged fading away unnoticed.

#What a lot of Hokum

image from alternews.com –      Where did the floor come from?

I’m not simply tired, I’m exhausted. My arms scream at me in pain for typing, but this is my only outside contact. It’s lonely not being able to see or speak with people. One more day of crawling up the hallway is making me shake uncontrollably. Is this Lyme disease, Bartonella or Babesiosis or some other confounded co-infection I’ve yet to be advised of; or is it Fibromyalgia, ME/CFS or one of its familiars?

I was feeling blah this morning. I had several appointments and I’d had a rough night. In fact I crawled up to the bathroom and cried for about an hour. I’m not giving in, but where the hell do I go?  How do I persuade my GP to look at my symptoms differently – not simply hand out stronger pain meds that leave me FOGGY!!!

To be able to think is such a gift. To know you are making sense and perhaps helping someone who needs to read this… that is my impetus for continuing. I have no answers, just a zillion questions. I want answers because I feel the medical establishment owe us that much – and then decent treatment. I have a right to a quality of life that is good enough to let me do what I’d like without crippling me. There is no need for it. If the damned doctors and insurance companies had done their due diligence when I had my accident, my simple accident, I wouldn’t be in this predicament now. I truly believe so. I wish I could sue the bejaysus out of them.

For the first time today, I ‘listened’ to someone who had always presented a positive push for the treatments they were given, the illness that accompanied them and was able to do so many physical activities I dream of doing’. Today I listened to them bemoaning their shuffling gait to reach the beach, crying because of the brain fog, the inability to raise your head from wherever it lays, and not be able to DO anything.  I admire this person, but here they are, for the first time in my space.

I want to offer advice but I am unable since no-one shared advice with me, I have none to offer except to say, I understand, I am there still, drowning in this misery but determined not to let it win.

#What a lot of Hokum

image from http://www.bannerhealth.com                                   I’m right here, You are not Alone!

I am going to search for these mysterious support forums and try to find out if these diseases have the same symptoms or not and what works for them. I have a few answers from dear people today. Yoga terrifies me because the pain is well established but I’ll try. I may not have  an answer, but by heavens, I will control my environment as much as I can so I can enjoy, to the fullest extent, the life I have been handed. I will also pass on any information I uncover – as a reference only, to be talked over with your doctors so that perhaps, in the fullness of time, we can beat these blasted torturous diseases. Such is my hope. Such is my prayer for all of us.

#What a lot of Hokum

image from childrensbookshop.circlesoft.net         Here come the answers!

As human beings, as Spirits having a human existence we search for answers. This is a prime directive so that we can learn. There is “a strange new world” out there, “new life and new civilisations” and, even more important, “The Truth is Out There”.

#What a lot of Hokum

image from aliens.wikia.com

What more could we ask for?  Who was right, Spock or Kirk?  Does “The good of the many outweigh the good of the few” or Does “The good of the one outweigh the good of the many?

We all deserve a better future.

Blessings, Susan x

© Susan Jamieson 2014

Related Articles

We The People

Imperfectly Perfect

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#Imperfectly perfect

Heavy orchid spray                      I love my orchids

Imperfectly Perfect
“Excellence is the Result of Caring more than others think is Wise, Risking more than others think is Safe, Dreaming more than others think is Practical, and Expecting more than others think is Possible.”
Ronnie Oldham
 ~

Doing anything half-heartedly gains you very little except dissatisfaction with life, and the reason is very simple; it is because you are settling for second best. There are hundreds, if not thousands of quotations, some by the rich and famous and some who would like to be. What they all have in common is to tell you what you should do to reach the top, whatever the top happens to be for you.

It seems difficult for me to acknowledge that today is Friday, that the ‘end’ of the week is almost here. When I sat down to type I suddenly wondered where the week had flown and what I had achieved during that time to make it appear to have vanished. An entire five days vanished almost without me being aware of it.

#Imperfectly Perfect

image from anndr.deviantart.com                 In your imagination anything is possible

Of course I could make excuses and blame something or nothing for the ‘loss of time’, yet the sad fact is, I don’t have a good reason. What I think may be of even more concern, is the fact that I don’t feel that I’m on my own with this. Would you say I was being “Mindful” or that I was “Being present” in everything I had done?

Strangely enough the answer is yes. I complete my Gratitude Journal every morning, refresh my Affirmations and send my healing to those I know and those I don’t. I complete my Life Change 90 program each day, all reminders of times passing and making the best use of it for myself and others. And of course, I write. When I have completed my morning ritual I think about writing and I write, whatever it is that has made an impact on me or whatever ‘comes’ to me.

#Imperfectly Perfect

image from aniisah.wordpress.com –   Time where does it go?

Today, time was concerning me. The fact that I felt I was losing time… great chunks of time which I couldn’t really account for. Was my mind taking a siesta? Were my subconscious busy planning things for me to do in the future? I’m not sure and that lack of surety has made me feel uncomfortable. Have I been losing time that I haven’t been aware of? That is a truly scary thought.

Thoughts of Alzheimer’s, blackouts, seizures, or other malady which have no name, just visceral fears, ran amok through my mind. The fear of losing one’s faculties is a great one since there is usually little chance of coming back from such a problem. “Accepting what is”, as I have read previously, would simply not be something I could comfortably acquiesce to.

#Imperfectly Perfect

image from http://www.josephinewallart.co.uk       Bubbles of time floating away

I have to add this little incident which occurred moments ago. My husband told me he had a rather unpleasant headache, something which is unusual for him. However he is off in his little den with computer, doing heaven only knows what.  Since there was silence in the house I called out to him – and since he is concerned about my welfare he came to see that I was alright. Checking on his ‘timetable’ to the days close I asked him if he had taken his little blue headache tablets. He replied in the negative. He had become caught up in whatever he was doing and his headache was still thumping away, something I can validate only too easily. In a mock stern voice I said, “Well, you’d better take some immediately, and I mean that with the utmost infection!”  Infection? The moment the word escaped my lips I knew it was wrong and he fell into gales of laughter. Charming! It is said that laughter is the best medicine, but take it from one who had some dreadful headaches, laughing with a headache is to be avoided. At least for me it is.

#Imperfectly Perfect

Pre Lyme meds

Taking the humour from the situation, I ask myself where my mind was. What was I thinking about? Was I thinking? Was I being courteous, mindful and present with my husband? I was thinking about him, his headache, and his little pills and hoping he would be finished soon, so he could rest. So what caused the slip?

Truthfully, it is a little unnerving, a little frightening, and preys on my mind. I can blame ill-health, the brain fog, the medication, but is it? Is that the cause of these slip ups and loss of time? I believe there is nothing serious wrong, but it remains an unanswered question.

I question whether I have the right diagnosis since I feel no better after nine months of treatment than before, in fact I feel worse, much worse. New horrors are affecting my mind, my stability, feeling as though my spine will fall apart like a domino stack at any moment, cracks and creaks and severe muscle and joint aches. All these should surely be getting better by now – or at least some of them?

#Imperfectly Perfect

image from gardeningwithconfidence.com     Because beauty hides the pain

Today I looked at some photos taken just two years ago, just after we became engaged. Happy days! I have some photos taken just a couple of weeks before my Lyme diagnosis and all the medication I began taking. In both instances I looked happy, full of life and energy, and slim and smart. I know people say being slim is not a benchmark for how your life is and “If you’re fat, you’re fat – accept it”.  No way! Not this little black duck. If I had been overweight previously I could say it was a fair comment. The only difference is the medication and my worsening physical state.

So I’m left with a conundrum and many questions. Perhaps that is the reason for the slip. I hope if any of my ‘fellow Lyme sufferers” or the “Fibromites”,  or fellow bloggers I have come to know, have any insights, suggestions, or anything to calm overwrought nerves, I would be more than simply grateful. In fact, if anyone has any words of advice to offer I would listen since I know that solutions come from many strange and otherwise discounted places.

#Imperfectly Perfect

Orchids, always Perfect

I know I am “Imperfectly Perfect. I might also be “Perfectly Imperfect” and that is how it should be. I am who and what I am. I care, for the people I have come to know, their hopes, their dreams, their problems and hurts. You, my readers, have become dear friends and I trust my dear friends to tell me the truth, their truth as they see it. From there it is my responsibility to find my truth.

That, to me is what a community is all about. It is, I hope, what our WordPress community has become. I have been welcomed, in my idiosyncrasies and that is a great gift, one I willingly reciprocate because friendship is a great gift.

I can live with “Imperfectly Perfect” since I accept I am a “work in progress. We all are.

#Imperfectly Perfect

My Dancing Lady Orchid.

“When science discovers the center of the universe, a lot of people will be disappointed to find they are not it.”  ~Bernard Baily

When the world seems full of imperfections, and answers are hard to find, there is a perfection in Orchids which soothes my heart, my mind and my soul.

Blessings,  Susan x

© Susan Jamieson 2014

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#My Husband, # My Lover, # My Friend

Ray and I on our wedding day May 11, 2011

“This is what our love is––a sacred pattern of unbroken unity sewn flawlessly invisible inside all other images, thoughts, smells, and sounds.”   Aberjhani, The River of Winged Dreams
My Husband, My Lover, My Friend

It’s been a rough week here and although I’ve tried to play it down, inside my head and in my posts, there have been times when the thought of simply ‘giving up’ wasn’t far away.  It’s very difficult to remain positive when you wake up and the moment of consciousness brings the awful knowledge that your entire body is screaming in agony.

It’s becoming a real nightmare, a waking nightmare and this morning was the worst to date. Let me explain, although it’s really hard for me to write this. I cannot move my legs, body, head or shoulders. I am fortunate that my hands and lower arms appear to be okay. I wake up feeling as though I’m in a roasting oven, on well done!  I cannot push the covers off and I cannot get out of bed, (I can’t move).

#My Husband, # My Lover, # My Friend

image from autobio-blogs.plazilla.com

I’ve tried everything I can think of to get out of bed without waking my husband, especially as sometimes I wake really early and I’m ruining his rest. He needs it, he has to look after someone who is cranky because she can’t do the things she has previously done alone and I’m not in the right head space to “give in gracefully” and acknowledge that for the moment, this has to be my reality.

#My Huasband, # My Lover,#  My Friend

image from http://www.123rf.com Is this what is coming?

So let’s go back to this morning. I had a magnificent sleep, six hours of deep sleep. It’s a shame it was drug enhanced but I can’t fight that any longer either. But, I heard Ray get up and that was enough to wake me.  It was a world of hurt and I had no idea what to do. My entire body was locked in this agonising position and I had to move. I simply had to.

From a mental angle it is full on despair, a waking nightmare I cannot banish. Giving in is against my entire world view. I have always stood my ground, but that has become a joke since I cannot stand. Not first thing in the morning.

The first challenge is getting upright and Ray has to hold my hands and when I say “Pull” he has to pull me upright quickly. This morning I screamed as he did this.  (Going slowly is more painful.) Ray has to slowly pull each leg around until I can reach the floor and then once again, pull me to my feet. He has to make sure I don’t fall backward or forwards or I’ll be on the floor. I’ve mentioned the ‘damned stairs’ before but this morning they almost defeated me. But he wouldn’t let go, nor would he give in and we painfully made our way along the corridor.

#My Husband, #My Lover, #My Friend

image from owlsandorchids.com       Is this all that’s left?

It has brought home the simple dignity chronically ill people suffer which is taken by others as something they just have to get used to. I wonder if, in the same position, they would find it so easy or welcome! Well, we made the journey, back to bed and sitting back brought another stifled scream. (I have some pride left). It was not going to be an easy day. I swore I wouldn’t take the tablets but I was afraid, seriously afraid I might have to call the ambulance.  Maybe it’s the meds but that’s tantamount to throwing in the towel and I’d rather the unthinkable than that.

So, doped up and basically incoherent I remained in a land somewhere between reality and who knows? I do know that after Ray had left I felt someone sitting down and then a cuddling into my legs, but that’s another story.

We decided on a bath, detoxing again, but with added special things Ray thought up. He helped me to the main bathroom, (when we build I’m having a bath in the en suite!) and the most beautiful sight met my eyes. My special bath salts, lavender-scented had been liberally placed in the bath, extra Epsom salts, my coconut body wash, coconut scented body cream, candles, my bath pillow and my iPod. I could have cried. It was exquisite – and I forget to get a photo so this will have to do…

How can something so wonderful be so painful? Getting in and lying back caused another loud groan, but I wasn’t going to let it stop me. (Note to self – larger bath needed in our en suite). It was hot, as it needed to be and as I felt the warmth slowly seeping into my body, I felt a wonderful feeling enveloping me. I got my iPod and some meditation music and I was left in peaceful silence.

I came back to myself as the water lost its heat but over an hour had passed and I was a wrinkled prune – almost. Helped out and dried off and then the final surprise, the beautiful coconut butter lotion… He carefully and slowly rubbed it in from my toes to my neck and down my back. I had the most incredible massage of my back. His magical fingers caressed the painful knots and tender spots and relaxed the rest of my back. I was covered from head to toe with lotion and I felt amazing. Every muscle had turned to jelly.

Helping me dress and back upstairs we had a beautiful cup of tea.

I realised how lucky I was. I found in one inexplicable gift from the Universe, my soul mate who is my husband, my lover and my best friend. The pain notwithstanding, I realise I’m so darned lucky. To be loved and accepted by such a wonderful man, someone who not only stands by me, but helps me through my nightmare is a rare blessing. I don’t make it easy on him at times and my guilt becomes another torment. I feel stuck in this limbo, yet supported by a magical earth angel.

What more can I say? Love is beautiful and found in unexpected place and at unusual times. Enjoy it anytime you can.

#My Husband, #My Lover, #My Friend

image from 2guysphoto.wordpress.com

I feel my love flowing to all my friends out here, and to all the people everywhere. Love will eventually change our world. It is too great to ignore forever.

Blessings and love to all.

Susan x

© Susan Jamieson  2014

~

For the Love of My Life and for the Love of Your Lives, whoever they may be.

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#Today

image from lionhearteagle.blogspot.com –

“Finish each day and be done with it.  You have done what you could; some blunders and absurdities have crept in; forget them as soon as you can.  Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.”  ~Ralph Waldo Emerson

Today

Today I gave in. For one brief moment which lasted an eternity I gave in. My body keeps going but my mind, that part which recognises the pain and despair; it had decided it had more than enough.  It said, “No More, Enough is Enough”.

Am I a quitter, I asked myself? I always thought I was strong and capable. I believed I could handle anything. I’ve heard of worse things than people should ever be expected to go through and felt their pain as I listened. I’ve seen some horrors I never thought I’d see and dealt with them as I needed to. I blindly walked through the path of domestic violence because I refused to believe it was happening to me.  I handled what was put before me and came through scarred but still me.

How do you explain to someone that, you thought that, being married meant “supporting your husband” and that everything he said you “had to do”, you had no choice in? I’ve carried bricks like a brickies labourer, carted cement like a concreter’s labourer. I’ve carried and rolled thousands of square metres of turf, barrowed topsoil and leveled it, built walls, sawn and carried timber and a hundred other things because, that’s what being married was all about. Doing things together and supporting your husband. It meant I was a slave to someone’s “ownership of me”.  Until the day my eyes were opened and I finally had enough and left.

#Today

image from facebook.com

What caused my back problems?

Yes, I’ve had two ‘minor’ car accidents and according to the ‘experts’ I had two “minor” whiplash episodes. They were so minor they refused to accept how much pain I had nor would they perform an x-ray. For years they refused until one day they relented, just to shut me up. Too damned late then and being proven right didn’t help at all.

Is it irony to acknowledge that in the beginning I was young and fit? Is it irony to say that because I went to the gym regularly, not only for fitness but as a stress release, that I damaged my body by doing too much exercise?  Is it irony to now say that my condition is age related? Are there any more excuses they can think up?

I believed, for one brief interlude, that being diagnosed with Lyme disease might answer all the questions, and eventually see me well. Now, since Lyme disease does not exist in Australia, (so say the powers that be), and my doctor, who specialised in infectious diseases, is actually registered only as a General Practitioner. He made a video announcing his treatment of his Lyme disease patients which caught the eyes of the Medical Association. Well, now he is restricted (banned) from treating anyone diagnosed with Lyme disease. They must be referred to someone else for treatment. Excuse me, treatment? How can they do that if they deny it exists in Australia? How much irony can one body take?

#Today

image from http://www.josephine wallart.co.uk

In one sense it doesn’t matter whether it is irony or not. No longer can the facts be argued. But what can never be ignored is the fact that they now say there is nothing they can do except load me with pain killers which rob me of the ability to think or act as the person I really am.

This morning I had reached the end of the road. At the moment of waking, a screaming throughout my body, of the pain of lying still, of having the chain mail weight of a light sheet and blanket over me was too much. Having to plead with my husband to PULL me quickly upright instead of gently brought an anguished scream from me.  Enough I thought, I’ve had enough.

But the end was too far away. If I didn’t want to soil myself I had to reach the bathroom. No dignity here.  Each painful slide of a foot forward speared pain up through every part of my body and into my brain. Two damned, bloody steps up that I loathe more deeply each day and then fifty agonising steps to the bathroom later, there is more pain. By the time I reach the vanity basin to wash my hands, I would breathe a sigh of relief, but I tried that once and it hurts too much. So I just think it instead.

The retracing of my journey is the same except going down those two damned stairs becomes a farce. ‘Enough’ my mind screams at me. ‘Enough’ I say! I would cry, but self-pity is useless and apart from that, crying is too damned painful. More irony!

I want an end to this. I want to be able to walk again, just like I used to. I want to be able to laugh and smile and not know that it is just a cover for how I really feel. I want to not feel that I’m an ingrate for complaining when so many are worse off than I.  I have too much to be grateful for.

I have a husband I love more than I would have believed possible. I have two wonderful children who have become incredible adults. I have a roof over my head. I have a beautiful ocean to see from my deck (if I can get there) and I have my beautiful orchids which are flowering again. I also have ‘my’ owl who visits me even here. I have too many things to be grateful for and no right to talk about giving up. I am reminded daily of how many wonderful things I have in my life to be grateful for. I have a journal I complete daily to remind me, if I should forget. I am grateful.

Today, I have had enough. Today this is too much to handle. Today I want an end to this. Today I want an end – not in some unknown future but now. Now. Today.

In the event that anyone needs an explanation; the beautiful pictures from Josephine Wall Art are to symbolise that I recognise that even in the midst of a shitty and awful day, I know that beauty and Spirit exists. It is there to help me to grasp that reality and find an even footing to go forward with. I hope it may help some of you also.

Today is almost over and tomorrow, my new today will be better, if only because I have coping mechanisms in place to haul me out of those depths before I drown. This is my fervent hope.

There are those who will understand my words, inexpertly written as they are, yet this is not for them alone. It is for everyone who decides to read it.

To those I say:

Blessings always,  Susan x

© Susan Jamieson 2014

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Spirit of Christmas

image from http://www.josephinewall.co.uk “Snow Flake” #spirit of Christmas

“Christmas, when observed with the right spirit, still has the power to call miracles from Heaven to Earth.”
Richelle E. Goodrich,   Smile Anyway

Spirit of Christmas

I’ve let myself down this year. More than this I’ve let everyone else down. I lost the spirit of Christmas.  After meditating for a long time to gain some perspective, some equanimity to look at everything I’ve made some remarkable discoveries.

  • As well as an existing back/neck problem which has seen me ‘confined’ for long periods I finally discovered:
  • I have Lyme disease and a host of companion diseases to confront.
  • From being “flat on my back” from the injury now I’m “flat on my back” from the medication, most of the time
  • I have been challenged to re-define my approach to the spirit of Christmas
Spirit of Christmas

image from caixinhadepirlimpimpim.blogspot.com

I found that I had allowed my existing beliefs about who and what I am, my beliefs about “how” Christmas should be and my role in it, the very spirit of Christmas, to push me into a position where I was severely depressed because I could not meet these expectations. What was more devastating was that I allowed this to almost ruin Christmas this year.

Spirit of Christmas

image from http://www.superstock.co Remember – if you were naughty you got coal in your stocking?

I have found, with the help and support from my husband and some very dear friends that this does not have to be my reality at all. The spirit of Christmas which is so important to me is still alive within me. Whilst this may sound such a simple thing it is, in itself, incredibly profound.  Anything which alters your perception in such a manner is life changing, if you allow it to be.

I found:

  • I have pain, at times intense and unremitting pain, but it does not define me, it is not ME
  • I have some nasty bugs running my internal programs but they do not define me, they are not ME
  • The lack of support for the spirit of Christmas I have always held as a family tradition is not defined by the presence of others, they are not ME

Most importantly I have found that:

  • I am a unique spiritual being having a human existence, my spirituality is not affected by any pain I might suffer, I am ME
  • My unique spiritual  being is not the zillion bugs attacking my human body because I am ME     and
  • It is my spiritual being which creates the magic, joy and belief in the Spirit of Christmas because I am ME

Such a simple and profound statement: I am ME.

Knowing who and what you are, is something which people search for their entire life. I have not found the full scope of Who, and What I Am, but I am content that I have found the ME who is here, right now.

I have always known and accepted I was a “work in progress” since that is the purpose of my spiritual presence here. I simply forgot that changes in the lives around me, which affected my own life, did not change my purpose. I had to learn how to adapt to those changes, to learn something new perhaps, but I retained the essence of who I am. I can retain the spirit of Christmas within me.

I am so grateful that this incredible appreciation has arrived now.  I have been struggling with my meditation but today I found it was there all along.  I have welcomed it back with so much happiness that it feels as though a great light has been re-lit and a beacon now shines in the place of the darkness the depression had enveloped me in.

Spirit of Christmas
“Beacon of Light” walking into sunshine  Spirit of Christmas
  • I am celebrating Christmas Day with my husband, our first alone together and it is going to be uniquely special because we are together.
  • I am celebrating Boxing Day with my son and his girlfriend, a first, which is another uniquely special occasion.
  • I will see my daughter when I can before New Year’s Eve, and I am grateful I can see her then. Whilst she cannot be here “at Christmas” she is here in spirit, in my heart, which is all I need at the moment.
  • Most importantly, my parents, Mum and Dad, will be here in spirit. I miss them more each year but I now know, beyond any doubt, that they will be with me as I sit at my dinner table with my husband eating our Christmas dinner.
  • In all of these and many more the spirit of Christmas I rejoice in is alive and well within me.

It may be the first time I have been ‘alone’ on Christmas Day but it will also be the first time that I have been able to put aside the crushing loneliness their absence brought – even if it is just a little. It makes it a little easier not to have my family physically with me at Christmas when I have always believed that family and the spirit of Christmas were synonymous with each other. I have no idea when or why that changed but since it has and I cannot turn back the clock, I have to “move with the times”.

As the saying goes, “life goes on”, and it does, whether we will it so or not. Whether it hurts or not, life always goes on. It is a spiritual lesson our human selves must accept. When we do, life isn’t as bad, even if just by a little.

Whilst my family may be moving in other directions, as their lives change, then so has mine. Now I have a wonderful and loving husband who spoils me, not just on Christmas Day but every day. As our love grows it encompasses all the changes which occur.  Our spirit of Christmas is alive and growing each year.

Spirit of Christmas

image from twu.ca

When we recall Christmas past, we usually find that the simplest things – not the great occasions – give off the greatest glow of happiness.”
Bob Hope

When so much seemed to have been taken away I looked and saw that I have so much to be grateful for, a family who are strong and capable individuals, who care enough to want to be around, and a husband whose love will wrap me round and always keep me safe and warm.

The Spirit of Christmas – what a wonderful thing to be grateful for,  I know I am. I hope you are too!

Blessings for a wonderful Christmas with the Spirit of Christmas alive in your own hearts.

Merry Christmas,  Susan x

© Susan Jamieson, 2013

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