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Posts Tagged ‘self acceptance’

 

#Advance and Retreat

Image courtesy of flickr.com

 “Not to give up under any circumstances should be the motto of our life: we shall try again and again, and we are bound to succeed. There will be obstacles, but we have to defy them. So do not give up, do not give up! Continue, continue! The goal is ahead of you. If you do not give up, you are bound to reach your destined goal.”
Sri Chinmoy, The Jewels of Happiness: Inspiration and Wisdom to Guide Your Life-Journey

There are times when it feels almost impossible to find out why things happen the way they do. At other times the steps you’ve taken to reach a point can be all too apparent. It doesn’t always mean that either scenario is palatable.

Several months ago I determined that I was going to push myself to my limits – and beyond, in order to help with our move, relocation to Queensland. The aches, the pains, discomfort, at times the agony and tears were expected. Not always palatable but, “I’d signed up for this” so I was aware of the possible consequences. In fact, they weren’t possible but probable consequences of suddenly throwing a body, already reduced to what felt like a meagre existence limping through each day, into what was, beyond mere normalcy when contemplating the workload of packing and unpacking a household.

Since then, and our move to Queensland, there has been more of the same. Yet along with that there was also a greater sense of achievement. Here I was after so many dreary pain filled months, achieving more than I had for such a long time. My decision to make my body work, like a normal body would, in ways it had been unable to without a great deal of pain meant I would have to accept the natural consequences. The achievement, the sense of purpose made the pain and tears and discomfort worthwhile.

As the old saying goes, “I paid in spades.” Yet, to me it was well worth it. I was doing something worthwhile. That sense of achievement long missed was a heady drug which helped me feel a little stronger, a little happier and much more contented as each day passed. Such are the things we measure our successes by.

#Advance and Retreat

image courtesy of howtoraiseyourvibration.blogspot.com

I have yet to find a straight road in life. In fact, I sincerely doubt there is such a thing as a straight road through life. Each road is meant to have its bends, uphill, downhill, roundabouts and the usual missed turns which send you back the way you’ve already been. I believe it’s the way we are meant to learn our lessons. Often not simply learn them but by revisiting them, ensure we really have learnt all there is from that learning experience. Cliché’s abound for this, “Two steps forward, one step back” and “Advance and Retreat” seem the most appropriate right now, and yet, that is what life is all about.

The occasional hiccough, the down day or days when things seemed to pile up and that wonderful forward momentum trickled so slowly by, came along with the rich positives. My ever patient husband was my strength and support to help me through and a very dear friend was always ready to offer sage advice and cheer me up. Just sweeping those dark clouds away helped enormously.

 

So What Happened? Well, Life Happened.

 

I needed one final visit to the “No longer Lyme doctor” to get my Genetic Genie result explained. I decided that after going to all the hassles of getting the wretched thing ordered, completed, sent away and the long wait for the results that I might as well find out what it had to say. Learning about my genetic structure seemed a fair recompense for all the pain and heartache over the past fourteen months. In reality, it seemed ludicrous not to get something valuable from this learning experience I had been given. It was also immensely intriguing. Mind boggling but intriguing.

#Advance and Retreat

image courtesy of http://www.crystalinks.com

Then he beat me to the gratifying punch line. Rather than being able to tell him I would not be returning to see him again he jumped in and said he didn’t want to see me again! Hmpf! It was, in retrospect, an odd way to put it, but the end result was the same. However, before I could say, So long, it’s been good, but”…..I was whisked into the Naturopaths office, deluged with a tonne of information and the adjuration that I needed “X,Y and Z” to correct the enzyme breaks shown in my genetic coding.

Now I’ve been through the hoops a time or two and I know how my body reacts to a great many things, especially dietary and medicinally based items. Several rather stressful episodes in the past few weeks had seen my friendly ulcer begin to act up and the attendant gastric reflux rear its burning head once more. It’s no fun at all feeling as though you have a vat of boiling acid churning inside your stomach and flowing upwards to burst out of your throat like an enraged Mount Etna! Upsetting but it was something I could get back under control with a little rest and meditation.

I did tell the Naturopath all this, explained in great detail since they seem to think you have no idea what you are talking about if you are not graphic. I explained – decisively, that anything not in capsule form would act like a gigantic irritant wreaking havoc on my stomach. I mustn’t have been clear enough. My powers of description must have deserted me since it was apparent she failed to believe me. Did I really care that these things were supposed to help my stomach and ulcer? Not if they were going to feel as if I were dying in the process.

The lowest ebb if my day is early morning at present and I was supposed to toss this vile concoction down my throat into an empty stomach to start the day. I love liquorice, but this vile stuff is not liquorice flavoured at all – it’s a pale imitation, a foil on the very word designed to befuddle and cloud the senses. Feral, foul and disgusting.

One week later and I feel too wretched to get out of bed. My throat is raw, my stomach in turmoil and the thought of a drink, not even food, is palatable. Add to that the almost indescribably migraine… what was I contemplating? This strange thought keeps circling my mind like a shark through bloody waters….”Why?” “Why did I do this to myself when I was beginning to feel so much better?” I have, yet again, paid an obscene price to once again poison myself in the name of getting well.

#Advance and Retreat

image courtesy of academyoffood.blogspot.com

Frustration, pain and anger, not a good mix for a stomach in turmoil. Nothing to show but a return to the nightmare and another email suggesting a garlic cleanse (eight whole cloves of garlic swallowed with water, no food for a day and febrile reaction, followed by a coffee enema). PLEASE.

NO! I’m sorry, but enough is enough. I’ve done everything I was asked to for fourteen months only to learn it was all for nothing – I don’t and never did have Lyme disease. I warned you I couldn’t tolerate this kind of natural “stuff” and what would happen and you didn’t listen, just pedaled your potions. A day in bed contemplating the next step has seen me decide that a polite but firm email is all I need to do. I am retiring from medical experimentation.

I’ve reached my place of clarity. I’ve had my hard-won taste of a return to normalcy. It was painful but it was an achievement of being able to act like everyone else. I’m not ready to take even a small step back to where I’ve been. There will be other ways to “fix” anything which may need fixing but not at the expense of my sanity and health. After all, what is health? It’s being able to live, laugh, move, do the normal things of life without pain and agony. It’s feeling loved and being loved and being able to love life again. Slowly but surely I am reaching that beautiful place and I will get there, without needing to pour copious amounts of money into someone’s pocket for pills and potions.

#Advance and Retreat

image courtesy of healthsaints.com

“A quitter never wins-and-a winner never quits.”
Napoleon Hill, Think and Grow Rich

Welcome back health and harmony.

 

I will Advance only and Retreat no more from this battle to be all I can be.

 

Blessings, Susan ♥

© Susan Jamieson July 2014

 

Postscript:
I admire and applaud all those who work in a health or alternate health capacity. What works for one may not for another and vice versa. I have recorded my feelings and responses to what I have been through and whilst they are true for me they may not be for another. I pray for good health for all people, including me. 🙂

 

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#IAsked

image from imagine.omusilibelula.ro

“You will know who truly loves you when you ask them to do you an unconventional favour.”
Michael Bassey Johnson

 

I asked for help and none was given

I asked once more and received a smile

I asked again and received a puzzled frown

How many times do I ask before I ask no more?

Blessings, Susan ♥

© Susan Jamieson 2014

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“The purpose of government is to enable the people of a nation to live in safety and happiness. Government exists for the interests of the governed, not for the governors.”
Thomas Jefferson

What a lot of Hokum for We The People.

~~~~~

I had originally decided to do a short blog and call it ‘The Spirit is willing but the flesh is Weak”. Yet the more I thought about it the more I realised it simply was a hoax. Most importantly I was simply fooling myself. It sounds so pathetic to continually say, “It’s been a bad week” or “I’ve had a rough couple of days” or any number of other platitudes.

That’s not to say that they aren’t true, it’s just that I’m tired of using the same statements as if I trot out one after the other when things are… challenging. I’m not sure quite where I am on this sliding spectrum which I use to gauge how well I’m travelling. Truthfully, I’m feeling more than a little sick and tired with being sick and tired and not really knowing if I’m on the right track.

For so long I dragged myself to the doctors and presented the same old symptoms, tiredness, aches in joints and muscles, my motivation slowly drained away as it became more and more difficult to do things. I’m a perfectionist. I’m also a control freak. I like things to be neat and tidy. I can find nothing wrong with being able to tell anyone exactly where to go to find anything they need in my home. At least I could do that a couple of years ago.

There are my detractors who accused me of OCD, but heck, at least I didn’t need to upend my home to locate a letter I need. I revel in my individuality and I don’t expect anyone else to follow suit – each to his own.

#What a lot of Hokum

image from frommylivingroom.blogspot.com                                      Everything in it’s pace and a place for everything.

Then I was told about Lyme disease. It seemed to fit so many of the anomalies in the symptoms I had. The medication protocols are – unpleasant. If Fibromyalgia causes Brain fog then Lyme – its co-infections and the medication to ‘treat’ it definitely increases it exponentially. But I’m no quitter. I’ve gone through the protocols, dragged myself in ever decreasing circles of confusion and despair trying to determine if I’m simply grasping at straws. And I’m still not finished.

I’ve blogged about it because I’ve struggled to find support groups or people who are willing to share information. How odd. Here is a disease the AMA refuse to accept is in Australia, penalise doctors who treat it and we cannot find anyone to give us recommendations to people who are helping the ‘sufferers’. Those who find these people, usually friends, or friends or friends, keep that information to themselves. Why? Is getting well to be a hoarded treasure? Bygone days of the privileged living and the disadvantaged fading away unnoticed.

#What a lot of Hokum

image from alternews.com –      Where did the floor come from?

I’m not simply tired, I’m exhausted. My arms scream at me in pain for typing, but this is my only outside contact. It’s lonely not being able to see or speak with people. One more day of crawling up the hallway is making me shake uncontrollably. Is this Lyme disease, Bartonella or Babesiosis or some other confounded co-infection I’ve yet to be advised of; or is it Fibromyalgia, ME/CFS or one of its familiars?

I was feeling blah this morning. I had several appointments and I’d had a rough night. In fact I crawled up to the bathroom and cried for about an hour. I’m not giving in, but where the hell do I go?  How do I persuade my GP to look at my symptoms differently – not simply hand out stronger pain meds that leave me FOGGY!!!

To be able to think is such a gift. To know you are making sense and perhaps helping someone who needs to read this… that is my impetus for continuing. I have no answers, just a zillion questions. I want answers because I feel the medical establishment owe us that much – and then decent treatment. I have a right to a quality of life that is good enough to let me do what I’d like without crippling me. There is no need for it. If the damned doctors and insurance companies had done their due diligence when I had my accident, my simple accident, I wouldn’t be in this predicament now. I truly believe so. I wish I could sue the bejaysus out of them.

For the first time today, I ‘listened’ to someone who had always presented a positive push for the treatments they were given, the illness that accompanied them and was able to do so many physical activities I dream of doing’. Today I listened to them bemoaning their shuffling gait to reach the beach, crying because of the brain fog, the inability to raise your head from wherever it lays, and not be able to DO anything.  I admire this person, but here they are, for the first time in my space.

I want to offer advice but I am unable since no-one shared advice with me, I have none to offer except to say, I understand, I am there still, drowning in this misery but determined not to let it win.

#What a lot of Hokum

image from http://www.bannerhealth.com                                   I’m right here, You are not Alone!

I am going to search for these mysterious support forums and try to find out if these diseases have the same symptoms or not and what works for them. I have a few answers from dear people today. Yoga terrifies me because the pain is well established but I’ll try. I may not have  an answer, but by heavens, I will control my environment as much as I can so I can enjoy, to the fullest extent, the life I have been handed. I will also pass on any information I uncover – as a reference only, to be talked over with your doctors so that perhaps, in the fullness of time, we can beat these blasted torturous diseases. Such is my hope. Such is my prayer for all of us.

#What a lot of Hokum

image from childrensbookshop.circlesoft.net         Here come the answers!

As human beings, as Spirits having a human existence we search for answers. This is a prime directive so that we can learn. There is “a strange new world” out there, “new life and new civilisations” and, even more important, “The Truth is Out There”.

#What a lot of Hokum

image from aliens.wikia.com

What more could we ask for?  Who was right, Spock or Kirk?  Does “The good of the many outweigh the good of the few” or Does “The good of the one outweigh the good of the many?

We all deserve a better future.

Blessings, Susan x

© Susan Jamieson 2014

Related Articles

We The People

Imperfectly Perfect

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#Imperfectly perfect

Heavy orchid spray                      I love my orchids

Imperfectly Perfect
“Excellence is the Result of Caring more than others think is Wise, Risking more than others think is Safe, Dreaming more than others think is Practical, and Expecting more than others think is Possible.”
Ronnie Oldham
 ~

Doing anything half-heartedly gains you very little except dissatisfaction with life, and the reason is very simple; it is because you are settling for second best. There are hundreds, if not thousands of quotations, some by the rich and famous and some who would like to be. What they all have in common is to tell you what you should do to reach the top, whatever the top happens to be for you.

It seems difficult for me to acknowledge that today is Friday, that the ‘end’ of the week is almost here. When I sat down to type I suddenly wondered where the week had flown and what I had achieved during that time to make it appear to have vanished. An entire five days vanished almost without me being aware of it.

#Imperfectly Perfect

image from anndr.deviantart.com                 In your imagination anything is possible

Of course I could make excuses and blame something or nothing for the ‘loss of time’, yet the sad fact is, I don’t have a good reason. What I think may be of even more concern, is the fact that I don’t feel that I’m on my own with this. Would you say I was being “Mindful” or that I was “Being present” in everything I had done?

Strangely enough the answer is yes. I complete my Gratitude Journal every morning, refresh my Affirmations and send my healing to those I know and those I don’t. I complete my Life Change 90 program each day, all reminders of times passing and making the best use of it for myself and others. And of course, I write. When I have completed my morning ritual I think about writing and I write, whatever it is that has made an impact on me or whatever ‘comes’ to me.

#Imperfectly Perfect

image from aniisah.wordpress.com –   Time where does it go?

Today, time was concerning me. The fact that I felt I was losing time… great chunks of time which I couldn’t really account for. Was my mind taking a siesta? Were my subconscious busy planning things for me to do in the future? I’m not sure and that lack of surety has made me feel uncomfortable. Have I been losing time that I haven’t been aware of? That is a truly scary thought.

Thoughts of Alzheimer’s, blackouts, seizures, or other malady which have no name, just visceral fears, ran amok through my mind. The fear of losing one’s faculties is a great one since there is usually little chance of coming back from such a problem. “Accepting what is”, as I have read previously, would simply not be something I could comfortably acquiesce to.

#Imperfectly Perfect

image from http://www.josephinewallart.co.uk       Bubbles of time floating away

I have to add this little incident which occurred moments ago. My husband told me he had a rather unpleasant headache, something which is unusual for him. However he is off in his little den with computer, doing heaven only knows what.  Since there was silence in the house I called out to him – and since he is concerned about my welfare he came to see that I was alright. Checking on his ‘timetable’ to the days close I asked him if he had taken his little blue headache tablets. He replied in the negative. He had become caught up in whatever he was doing and his headache was still thumping away, something I can validate only too easily. In a mock stern voice I said, “Well, you’d better take some immediately, and I mean that with the utmost infection!”  Infection? The moment the word escaped my lips I knew it was wrong and he fell into gales of laughter. Charming! It is said that laughter is the best medicine, but take it from one who had some dreadful headaches, laughing with a headache is to be avoided. At least for me it is.

#Imperfectly Perfect

Pre Lyme meds

Taking the humour from the situation, I ask myself where my mind was. What was I thinking about? Was I thinking? Was I being courteous, mindful and present with my husband? I was thinking about him, his headache, and his little pills and hoping he would be finished soon, so he could rest. So what caused the slip?

Truthfully, it is a little unnerving, a little frightening, and preys on my mind. I can blame ill-health, the brain fog, the medication, but is it? Is that the cause of these slip ups and loss of time? I believe there is nothing serious wrong, but it remains an unanswered question.

I question whether I have the right diagnosis since I feel no better after nine months of treatment than before, in fact I feel worse, much worse. New horrors are affecting my mind, my stability, feeling as though my spine will fall apart like a domino stack at any moment, cracks and creaks and severe muscle and joint aches. All these should surely be getting better by now – or at least some of them?

#Imperfectly Perfect

image from gardeningwithconfidence.com     Because beauty hides the pain

Today I looked at some photos taken just two years ago, just after we became engaged. Happy days! I have some photos taken just a couple of weeks before my Lyme diagnosis and all the medication I began taking. In both instances I looked happy, full of life and energy, and slim and smart. I know people say being slim is not a benchmark for how your life is and “If you’re fat, you’re fat – accept it”.  No way! Not this little black duck. If I had been overweight previously I could say it was a fair comment. The only difference is the medication and my worsening physical state.

So I’m left with a conundrum and many questions. Perhaps that is the reason for the slip. I hope if any of my ‘fellow Lyme sufferers” or the “Fibromites”,  or fellow bloggers I have come to know, have any insights, suggestions, or anything to calm overwrought nerves, I would be more than simply grateful. In fact, if anyone has any words of advice to offer I would listen since I know that solutions come from many strange and otherwise discounted places.

#Imperfectly Perfect

Orchids, always Perfect

I know I am “Imperfectly Perfect. I might also be “Perfectly Imperfect” and that is how it should be. I am who and what I am. I care, for the people I have come to know, their hopes, their dreams, their problems and hurts. You, my readers, have become dear friends and I trust my dear friends to tell me the truth, their truth as they see it. From there it is my responsibility to find my truth.

That, to me is what a community is all about. It is, I hope, what our WordPress community has become. I have been welcomed, in my idiosyncrasies and that is a great gift, one I willingly reciprocate because friendship is a great gift.

I can live with “Imperfectly Perfect” since I accept I am a “work in progress. We all are.

#Imperfectly Perfect

My Dancing Lady Orchid.

“When science discovers the center of the universe, a lot of people will be disappointed to find they are not it.”  ~Bernard Baily

When the world seems full of imperfections, and answers are hard to find, there is a perfection in Orchids which soothes my heart, my mind and my soul.

Blessings,  Susan x

© Susan Jamieson 2014

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#My Husband, # My Lover, # My Friend

Ray and I on our wedding day May 11, 2011

“This is what our love is––a sacred pattern of unbroken unity sewn flawlessly invisible inside all other images, thoughts, smells, and sounds.”   Aberjhani, The River of Winged Dreams
My Husband, My Lover, My Friend

It’s been a rough week here and although I’ve tried to play it down, inside my head and in my posts, there have been times when the thought of simply ‘giving up’ wasn’t far away.  It’s very difficult to remain positive when you wake up and the moment of consciousness brings the awful knowledge that your entire body is screaming in agony.

It’s becoming a real nightmare, a waking nightmare and this morning was the worst to date. Let me explain, although it’s really hard for me to write this. I cannot move my legs, body, head or shoulders. I am fortunate that my hands and lower arms appear to be okay. I wake up feeling as though I’m in a roasting oven, on well done!  I cannot push the covers off and I cannot get out of bed, (I can’t move).

#My Husband, # My Lover, # My Friend

image from autobio-blogs.plazilla.com

I’ve tried everything I can think of to get out of bed without waking my husband, especially as sometimes I wake really early and I’m ruining his rest. He needs it, he has to look after someone who is cranky because she can’t do the things she has previously done alone and I’m not in the right head space to “give in gracefully” and acknowledge that for the moment, this has to be my reality.

#My Huasband, # My Lover,#  My Friend

image from http://www.123rf.com Is this what is coming?

So let’s go back to this morning. I had a magnificent sleep, six hours of deep sleep. It’s a shame it was drug enhanced but I can’t fight that any longer either. But, I heard Ray get up and that was enough to wake me.  It was a world of hurt and I had no idea what to do. My entire body was locked in this agonising position and I had to move. I simply had to.

From a mental angle it is full on despair, a waking nightmare I cannot banish. Giving in is against my entire world view. I have always stood my ground, but that has become a joke since I cannot stand. Not first thing in the morning.

The first challenge is getting upright and Ray has to hold my hands and when I say “Pull” he has to pull me upright quickly. This morning I screamed as he did this.  (Going slowly is more painful.) Ray has to slowly pull each leg around until I can reach the floor and then once again, pull me to my feet. He has to make sure I don’t fall backward or forwards or I’ll be on the floor. I’ve mentioned the ‘damned stairs’ before but this morning they almost defeated me. But he wouldn’t let go, nor would he give in and we painfully made our way along the corridor.

#My Husband, #My Lover, #My Friend

image from owlsandorchids.com       Is this all that’s left?

It has brought home the simple dignity chronically ill people suffer which is taken by others as something they just have to get used to. I wonder if, in the same position, they would find it so easy or welcome! Well, we made the journey, back to bed and sitting back brought another stifled scream. (I have some pride left). It was not going to be an easy day. I swore I wouldn’t take the tablets but I was afraid, seriously afraid I might have to call the ambulance.  Maybe it’s the meds but that’s tantamount to throwing in the towel and I’d rather the unthinkable than that.

So, doped up and basically incoherent I remained in a land somewhere between reality and who knows? I do know that after Ray had left I felt someone sitting down and then a cuddling into my legs, but that’s another story.

We decided on a bath, detoxing again, but with added special things Ray thought up. He helped me to the main bathroom, (when we build I’m having a bath in the en suite!) and the most beautiful sight met my eyes. My special bath salts, lavender-scented had been liberally placed in the bath, extra Epsom salts, my coconut body wash, coconut scented body cream, candles, my bath pillow and my iPod. I could have cried. It was exquisite – and I forget to get a photo so this will have to do…

How can something so wonderful be so painful? Getting in and lying back caused another loud groan, but I wasn’t going to let it stop me. (Note to self – larger bath needed in our en suite). It was hot, as it needed to be and as I felt the warmth slowly seeping into my body, I felt a wonderful feeling enveloping me. I got my iPod and some meditation music and I was left in peaceful silence.

I came back to myself as the water lost its heat but over an hour had passed and I was a wrinkled prune – almost. Helped out and dried off and then the final surprise, the beautiful coconut butter lotion… He carefully and slowly rubbed it in from my toes to my neck and down my back. I had the most incredible massage of my back. His magical fingers caressed the painful knots and tender spots and relaxed the rest of my back. I was covered from head to toe with lotion and I felt amazing. Every muscle had turned to jelly.

Helping me dress and back upstairs we had a beautiful cup of tea.

I realised how lucky I was. I found in one inexplicable gift from the Universe, my soul mate who is my husband, my lover and my best friend. The pain notwithstanding, I realise I’m so darned lucky. To be loved and accepted by such a wonderful man, someone who not only stands by me, but helps me through my nightmare is a rare blessing. I don’t make it easy on him at times and my guilt becomes another torment. I feel stuck in this limbo, yet supported by a magical earth angel.

What more can I say? Love is beautiful and found in unexpected place and at unusual times. Enjoy it anytime you can.

#My Husband, #My Lover, #My Friend

image from 2guysphoto.wordpress.com

I feel my love flowing to all my friends out here, and to all the people everywhere. Love will eventually change our world. It is too great to ignore forever.

Blessings and love to all.

Susan x

© Susan Jamieson  2014

~

For the Love of My Life and for the Love of Your Lives, whoever they may be.

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#Today

image from lionhearteagle.blogspot.com –

“Finish each day and be done with it.  You have done what you could; some blunders and absurdities have crept in; forget them as soon as you can.  Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.”  ~Ralph Waldo Emerson

Today

Today I gave in. For one brief moment which lasted an eternity I gave in. My body keeps going but my mind, that part which recognises the pain and despair; it had decided it had more than enough.  It said, “No More, Enough is Enough”.

Am I a quitter, I asked myself? I always thought I was strong and capable. I believed I could handle anything. I’ve heard of worse things than people should ever be expected to go through and felt their pain as I listened. I’ve seen some horrors I never thought I’d see and dealt with them as I needed to. I blindly walked through the path of domestic violence because I refused to believe it was happening to me.  I handled what was put before me and came through scarred but still me.

How do you explain to someone that, you thought that, being married meant “supporting your husband” and that everything he said you “had to do”, you had no choice in? I’ve carried bricks like a brickies labourer, carted cement like a concreter’s labourer. I’ve carried and rolled thousands of square metres of turf, barrowed topsoil and leveled it, built walls, sawn and carried timber and a hundred other things because, that’s what being married was all about. Doing things together and supporting your husband. It meant I was a slave to someone’s “ownership of me”.  Until the day my eyes were opened and I finally had enough and left.

#Today

image from facebook.com

What caused my back problems?

Yes, I’ve had two ‘minor’ car accidents and according to the ‘experts’ I had two “minor” whiplash episodes. They were so minor they refused to accept how much pain I had nor would they perform an x-ray. For years they refused until one day they relented, just to shut me up. Too damned late then and being proven right didn’t help at all.

Is it irony to acknowledge that in the beginning I was young and fit? Is it irony to say that because I went to the gym regularly, not only for fitness but as a stress release, that I damaged my body by doing too much exercise?  Is it irony to now say that my condition is age related? Are there any more excuses they can think up?

I believed, for one brief interlude, that being diagnosed with Lyme disease might answer all the questions, and eventually see me well. Now, since Lyme disease does not exist in Australia, (so say the powers that be), and my doctor, who specialised in infectious diseases, is actually registered only as a General Practitioner. He made a video announcing his treatment of his Lyme disease patients which caught the eyes of the Medical Association. Well, now he is restricted (banned) from treating anyone diagnosed with Lyme disease. They must be referred to someone else for treatment. Excuse me, treatment? How can they do that if they deny it exists in Australia? How much irony can one body take?

#Today

image from http://www.josephine wallart.co.uk

In one sense it doesn’t matter whether it is irony or not. No longer can the facts be argued. But what can never be ignored is the fact that they now say there is nothing they can do except load me with pain killers which rob me of the ability to think or act as the person I really am.

This morning I had reached the end of the road. At the moment of waking, a screaming throughout my body, of the pain of lying still, of having the chain mail weight of a light sheet and blanket over me was too much. Having to plead with my husband to PULL me quickly upright instead of gently brought an anguished scream from me.  Enough I thought, I’ve had enough.

But the end was too far away. If I didn’t want to soil myself I had to reach the bathroom. No dignity here.  Each painful slide of a foot forward speared pain up through every part of my body and into my brain. Two damned, bloody steps up that I loathe more deeply each day and then fifty agonising steps to the bathroom later, there is more pain. By the time I reach the vanity basin to wash my hands, I would breathe a sigh of relief, but I tried that once and it hurts too much. So I just think it instead.

The retracing of my journey is the same except going down those two damned stairs becomes a farce. ‘Enough’ my mind screams at me. ‘Enough’ I say! I would cry, but self-pity is useless and apart from that, crying is too damned painful. More irony!

I want an end to this. I want to be able to walk again, just like I used to. I want to be able to laugh and smile and not know that it is just a cover for how I really feel. I want to not feel that I’m an ingrate for complaining when so many are worse off than I.  I have too much to be grateful for.

I have a husband I love more than I would have believed possible. I have two wonderful children who have become incredible adults. I have a roof over my head. I have a beautiful ocean to see from my deck (if I can get there) and I have my beautiful orchids which are flowering again. I also have ‘my’ owl who visits me even here. I have too many things to be grateful for and no right to talk about giving up. I am reminded daily of how many wonderful things I have in my life to be grateful for. I have a journal I complete daily to remind me, if I should forget. I am grateful.

Today, I have had enough. Today this is too much to handle. Today I want an end to this. Today I want an end – not in some unknown future but now. Now. Today.

In the event that anyone needs an explanation; the beautiful pictures from Josephine Wall Art are to symbolise that I recognise that even in the midst of a shitty and awful day, I know that beauty and Spirit exists. It is there to help me to grasp that reality and find an even footing to go forward with. I hope it may help some of you also.

Today is almost over and tomorrow, my new today will be better, if only because I have coping mechanisms in place to haul me out of those depths before I drown. This is my fervent hope.

There are those who will understand my words, inexpertly written as they are, yet this is not for them alone. It is for everyone who decides to read it.

To those I say:

Blessings always,  Susan x

© Susan Jamieson 2014

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And so this is Christmas

image from creationinateapot.com       The Holly and the Ivy

False friendship, like the ivy, decays and ruins the walls it embraces; but true friendship gives new life and animation to the object it supports Richard Burton
And so this is Christmas

There is a certain element of “Why are you doing this?” It’s a question that surges through my mind often at midnight. Most people, or many people, are already in bed or at least preparing for bed. Their day is almost over and they are calm, relaxed and settled for the night. It is time to get into the rest and healing mode and allow our body to repair and recharge for the next day.

So I ask myself once again, why am I sitting here at this time of night?  The answer is fairly simple.

And so this is Christmas

Am I tired? – Well yes I am. It’s been a big day. In fact it’s been a five big days for me, and I struggle with having to accept the reality of that. After all, Christmas only comes once a year. This year my husband did much of the physical work getting ready for the big day. In fact we both shared the work of readying the turkey. What I couldn’t manage I instructed him on what to do. Not being able to do it all myself was irritating.  I’m sure it was quite trying for him too!

And so this is Christmas – Christmas Day

Technically, Christmas Day should have been relatively easy going as we were spending the day alone. There was neither family nor friends calling in that day, we were a duo of orphans for the day. Yet somehow, the very fact that it was Christmas, the expectations I had of the day, made it a day where, by days end I was feeling drained. Happy but none the less drained. I already know that this had to do with the change in my routine of many decades (oh I’m so ancient!) transitioning into a new phase. It’s something I have to work on and it is already part of my plan for 2014.

And so this is Christmas – Boxing Day

Boxing Day was a special day; my son and his girlfriend came down to spend it with us. Once again my husband did much of the work, under supervision, but by the end of the day I was exhausted. I had a beautiful day but I drastically under estimated how I was going to respond to the physical part of the day. From spending whenever I needed to resting, to spending all the day talking, joking and reminiscing. Including preparing, with help, the lunch, and afterwards, the clean-up, it was a surprisingly big change. Whilst being really happy to see them I was truly disappointed that I hadn’t coped better. Reality can be a harsh task master or task mistress.

And so this is Christmas – Friday

Hence, Friday was a mandatory day of rest. It had been decided beforehand when we realised my daughter would be unable to get down for Boxing Day and due to work pressures we agreed to travel up to Brisbane to see her. Once again I underestimated how much the mere trip would tire me. I find it frustrating, aggravating and annoying, and I have yet to come to terms with those feelings. We had a lovely lunch, more talk, laughter, reminiscing, and I also got to play with our dogs. One was mine but they have both been together since puppies and, since it would have been too difficult on the dogs, or was it on Natalie, she ended up with both dogs.  It was wonderful and nostalgic at the same time seeing them again. It is astounding how draining the emotions can be, and yet eliminating them reduces the humanity of a person. I’ll stick with emotions and learn how to deal with these things in the coming year.

So this evening I’m feeling ‘fried’.  The aches and pains are back and the brain fog is starting to creep from the corners of my mind with each passing minute. I knew it was going to happen when we arrived home and I could feel the stiffness as I tried to get out of the car.

And so this is Christmas – Today

I mentioned in an earlier post, “I’m a work in progress” and I accept that I am a spirit having a human existence. All these physical and emotional knots are things I have to learn to deal with. That’s not to say they have to be easy, nor even hard, they simply are to be learned. I have time, plenty of time in which to learn these things. There will be days when I wish I didn’t have to learn them, days when I wish it would all go away. I’m hopeful there will be days when I can sail through these lessons with equanimity and aplomb, but I have a way to go yet before I reach that point.

And so this is Christmas

quote by Audrey Hepburn

For now, I’m doing the best I can. I hope I see things realistically, without rose coloured glasses and without too much of the ‘poor me’ syndrome which I despise.  No, I don’t like this situation but I have to learn to deal with it, without becoming a psychoanalysing “Dr Phil”, and without feeling sorry for myself at every twist and turn. A little is okay, but too much is…. Well it’s too much. I’m sure my husband will let me know if I go too far down that track.

So, I’m hoping everyone has enjoyed the festive season thus far and is gearing up for New Year if they are going to be ‘doing it’. Personally I think I’ll be spending it quietly with my cards and books. There is a New Moon on the 1st of January and I will most probably get myself ready for that. It’s something my husband and I look forward to. That’s the plan at this point in time. You can have a drink for me.

Blessings.  Susan x

© Susan Jamieson 2013

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