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#IamYouAre (more…)

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#Sleep of the Damned
   If Only I Could, I surely Would

 

“Life is all about timing… the unreachable becomes reachable, the unavailable become available, the unattainable… attainable. Have the patience, wait it out; it’s all about timing.” Stacey Charter

I know about the sleep of the damned. It’s not quite what you might think. No diving into a hellish deep, tortured souls tearing you apart – perhaps it is for some, but not for me.

Mine lies somewhere between a light doze and wakefulness. It’s the lightest doze imaginable where my heartbeat plays time with my thoughts. Thoughts in colour and action to make sleeping a sometimes joke. Occasionally I’ll slip in the transition between the two and fall into sleep’s welcome embrace. Of late, it’s filled with vibrant dreams, some easy to understand, some so confused I’m not sure where the middle, beginning and end are. But that too is immaterial here.

For several weeks, I have fought a good fight against the effects of a niacin flush. Sounds like a fancy cocktail, but without the little umbrella! Instead, it’s a detox strangle – melodramatic, I’m sure. Yet I told “them” I was allergic to “B” vitamins. I’ve had to be careful for years, guarding myself against anything containing “B” vitamins which it seems my body cannot tolerate, all except B12, in which I am so deficient they call it ‘Pernicious Anaemia’!

So my niacin flush – beautiful blushes of sunset red or sunrise hues – more like sunrise I think, as it’s followed by the rising heat of the blush and a raging conflagration – akin to a wildfire. It cannot be quenched or put out, nor tamped down. I have to allow it to – yes, flush through my body.

Like most things it’s good and bad. The good is the benefit of the detox, removing those things harmful to me. The bad – oh just the crippling migraines, light sensitivity, crushing aches and pains as though my body is being torn apart.

Even this could be managed with good rest. Yet the pain, muscle, bone, head all combine to throw a huge barricade across that nebulous boundary between the twilight doze and real sleep, hence the “sleep of the damned”!

It’s frustrating since I crave organisation. I like my ordered routines. Poetry, stories, conversation and more, photos and sharing my thoughts. That has been tossed out like yesterday’s garbage, until my niacin flush has gone away.

If I find it frustrating, it may be worse for those trying to follow my blog, since you have no idea what or when I’m publishing. It pains me to say it, as so much else does at present, but I’m having to learn patience. It’s a dreadful curse, one I’ve fought most of my life. But I promise you this, I will be back on track, with my writing and my schedule, just as soon as I’ve put out my bushfire!

Since today was my day to visit my doctor and half a dozen hypodermics later, thought is a vague thing, and vision is blurry. You might say the spirit is willing but the body is weak. Hence this little explanation for you to understand my dilemma. Now I look forward to another night of the sleep of the damned again!

 

Blessings, Susan, ♥

© Susan Jamieson, 2014

© Executive Sorceress, 2014

Image from http://www.josephienwallart.co.uk  

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The Pact
#The Pact

Image from xose00100.deviantart.com

“We have doomed the wolf not for what it is, but for what we deliberately and mistakenly perceive it to be –the mythologized epitome of a savage ruthless killer – which is, in reality, no more than a reflected image of ourself.”
Farley Mowat, Never Cry Wolf : Amazing True Story of Life Among Arctic Wolves

Silence

Weighed heavily as she waited

Hanging like a wet cloak on her shoulders

Wind

Whipped through the tops of the trees

Bringing gusts lashing the grass below

Rolling lines flowed away from her

As the wind blew the grass towards the plain

Confetti like fluttering heralded the autumn leaves

Fluttering

In colourful swathes around her head

In the silence she could hear them coming

Talking softly to each other

No need to shout

When the mind can say so much more

A pause

As they picked up her scent

Her family, her once family

Questions flickered swiftly through her mind

Why was she here?

Two legs could not be seen with the pack

Heart breaking silently she pleaded with them

Lift the promise she made

Her time with the two legs could end now

The pack was safe its territory secure

No longer was the bargain required

That one of the pack should stay with the two legs

Become one of the two legs

So they could feel safe

Safe that the pack would no longer bring them down

When they ventured into the pack’s territory

Puzzled they asked her

Why should the pact be broken?

Her family could hunt and kill the deer

The two legs no longer hunted them for their pelts

The cubs could grow in safety

Run with the wind

Play with the salmon

Raise their cubs in time

Two legs could never be trusted

If she returned

Two legs would hunt them once again

Thoughts were becoming fainter now

As the pack moved further away

Wait!

She silently cried to the night

Let me return! Let  Me  Return……

Silence

Weighed heavily as she waited

Hanging like a wet cloak on her shoulders

A heavy shroud for her heavy heart.

#The Pact

image from howlingforjustice.wordpress.com

© Susan Jamieson 2014

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“The purpose of government is to enable the people of a nation to live in safety and happiness. Government exists for the interests of the governed, not for the governors.”
Thomas Jefferson

What a lot of Hokum for We The People.

~~~~~

I had originally decided to do a short blog and call it ‘The Spirit is willing but the flesh is Weak”. Yet the more I thought about it the more I realised it simply was a hoax. Most importantly I was simply fooling myself. It sounds so pathetic to continually say, “It’s been a bad week” or “I’ve had a rough couple of days” or any number of other platitudes.

That’s not to say that they aren’t true, it’s just that I’m tired of using the same statements as if I trot out one after the other when things are… challenging. I’m not sure quite where I am on this sliding spectrum which I use to gauge how well I’m travelling. Truthfully, I’m feeling more than a little sick and tired with being sick and tired and not really knowing if I’m on the right track.

For so long I dragged myself to the doctors and presented the same old symptoms, tiredness, aches in joints and muscles, my motivation slowly drained away as it became more and more difficult to do things. I’m a perfectionist. I’m also a control freak. I like things to be neat and tidy. I can find nothing wrong with being able to tell anyone exactly where to go to find anything they need in my home. At least I could do that a couple of years ago.

There are my detractors who accused me of OCD, but heck, at least I didn’t need to upend my home to locate a letter I need. I revel in my individuality and I don’t expect anyone else to follow suit – each to his own.

#What a lot of Hokum

image from frommylivingroom.blogspot.com                                      Everything in it’s pace and a place for everything.

Then I was told about Lyme disease. It seemed to fit so many of the anomalies in the symptoms I had. The medication protocols are – unpleasant. If Fibromyalgia causes Brain fog then Lyme – its co-infections and the medication to ‘treat’ it definitely increases it exponentially. But I’m no quitter. I’ve gone through the protocols, dragged myself in ever decreasing circles of confusion and despair trying to determine if I’m simply grasping at straws. And I’m still not finished.

I’ve blogged about it because I’ve struggled to find support groups or people who are willing to share information. How odd. Here is a disease the AMA refuse to accept is in Australia, penalise doctors who treat it and we cannot find anyone to give us recommendations to people who are helping the ‘sufferers’. Those who find these people, usually friends, or friends or friends, keep that information to themselves. Why? Is getting well to be a hoarded treasure? Bygone days of the privileged living and the disadvantaged fading away unnoticed.

#What a lot of Hokum

image from alternews.com –      Where did the floor come from?

I’m not simply tired, I’m exhausted. My arms scream at me in pain for typing, but this is my only outside contact. It’s lonely not being able to see or speak with people. One more day of crawling up the hallway is making me shake uncontrollably. Is this Lyme disease, Bartonella or Babesiosis or some other confounded co-infection I’ve yet to be advised of; or is it Fibromyalgia, ME/CFS or one of its familiars?

I was feeling blah this morning. I had several appointments and I’d had a rough night. In fact I crawled up to the bathroom and cried for about an hour. I’m not giving in, but where the hell do I go?  How do I persuade my GP to look at my symptoms differently – not simply hand out stronger pain meds that leave me FOGGY!!!

To be able to think is such a gift. To know you are making sense and perhaps helping someone who needs to read this… that is my impetus for continuing. I have no answers, just a zillion questions. I want answers because I feel the medical establishment owe us that much – and then decent treatment. I have a right to a quality of life that is good enough to let me do what I’d like without crippling me. There is no need for it. If the damned doctors and insurance companies had done their due diligence when I had my accident, my simple accident, I wouldn’t be in this predicament now. I truly believe so. I wish I could sue the bejaysus out of them.

For the first time today, I ‘listened’ to someone who had always presented a positive push for the treatments they were given, the illness that accompanied them and was able to do so many physical activities I dream of doing’. Today I listened to them bemoaning their shuffling gait to reach the beach, crying because of the brain fog, the inability to raise your head from wherever it lays, and not be able to DO anything.  I admire this person, but here they are, for the first time in my space.

I want to offer advice but I am unable since no-one shared advice with me, I have none to offer except to say, I understand, I am there still, drowning in this misery but determined not to let it win.

#What a lot of Hokum

image from http://www.bannerhealth.com                                   I’m right here, You are not Alone!

I am going to search for these mysterious support forums and try to find out if these diseases have the same symptoms or not and what works for them. I have a few answers from dear people today. Yoga terrifies me because the pain is well established but I’ll try. I may not have  an answer, but by heavens, I will control my environment as much as I can so I can enjoy, to the fullest extent, the life I have been handed. I will also pass on any information I uncover – as a reference only, to be talked over with your doctors so that perhaps, in the fullness of time, we can beat these blasted torturous diseases. Such is my hope. Such is my prayer for all of us.

#What a lot of Hokum

image from childrensbookshop.circlesoft.net         Here come the answers!

As human beings, as Spirits having a human existence we search for answers. This is a prime directive so that we can learn. There is “a strange new world” out there, “new life and new civilisations” and, even more important, “The Truth is Out There”.

#What a lot of Hokum

image from aliens.wikia.com

What more could we ask for?  Who was right, Spock or Kirk?  Does “The good of the many outweigh the good of the few” or Does “The good of the one outweigh the good of the many?

We all deserve a better future.

Blessings, Susan x

© Susan Jamieson 2014

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There is nothing to say…… this is true love, the man in my life. I love you Darling.

~

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#My Husband, # My Lover, # My Friend

Ray and I on our wedding day May 11, 2011

“This is what our love is––a sacred pattern of unbroken unity sewn flawlessly invisible inside all other images, thoughts, smells, and sounds.”   Aberjhani, The River of Winged Dreams
My Husband, My Lover, My Friend

It’s been a rough week here and although I’ve tried to play it down, inside my head and in my posts, there have been times when the thought of simply ‘giving up’ wasn’t far away.  It’s very difficult to remain positive when you wake up and the moment of consciousness brings the awful knowledge that your entire body is screaming in agony.

It’s becoming a real nightmare, a waking nightmare and this morning was the worst to date. Let me explain, although it’s really hard for me to write this. I cannot move my legs, body, head or shoulders. I am fortunate that my hands and lower arms appear to be okay. I wake up feeling as though I’m in a roasting oven, on well done!  I cannot push the covers off and I cannot get out of bed, (I can’t move).

#My Husband, # My Lover, # My Friend

image from autobio-blogs.plazilla.com

I’ve tried everything I can think of to get out of bed without waking my husband, especially as sometimes I wake really early and I’m ruining his rest. He needs it, he has to look after someone who is cranky because she can’t do the things she has previously done alone and I’m not in the right head space to “give in gracefully” and acknowledge that for the moment, this has to be my reality.

#My Huasband, # My Lover,#  My Friend

image from http://www.123rf.com Is this what is coming?

So let’s go back to this morning. I had a magnificent sleep, six hours of deep sleep. It’s a shame it was drug enhanced but I can’t fight that any longer either. But, I heard Ray get up and that was enough to wake me.  It was a world of hurt and I had no idea what to do. My entire body was locked in this agonising position and I had to move. I simply had to.

From a mental angle it is full on despair, a waking nightmare I cannot banish. Giving in is against my entire world view. I have always stood my ground, but that has become a joke since I cannot stand. Not first thing in the morning.

The first challenge is getting upright and Ray has to hold my hands and when I say “Pull” he has to pull me upright quickly. This morning I screamed as he did this.  (Going slowly is more painful.) Ray has to slowly pull each leg around until I can reach the floor and then once again, pull me to my feet. He has to make sure I don’t fall backward or forwards or I’ll be on the floor. I’ve mentioned the ‘damned stairs’ before but this morning they almost defeated me. But he wouldn’t let go, nor would he give in and we painfully made our way along the corridor.

#My Husband, #My Lover, #My Friend

image from owlsandorchids.com       Is this all that’s left?

It has brought home the simple dignity chronically ill people suffer which is taken by others as something they just have to get used to. I wonder if, in the same position, they would find it so easy or welcome! Well, we made the journey, back to bed and sitting back brought another stifled scream. (I have some pride left). It was not going to be an easy day. I swore I wouldn’t take the tablets but I was afraid, seriously afraid I might have to call the ambulance.  Maybe it’s the meds but that’s tantamount to throwing in the towel and I’d rather the unthinkable than that.

So, doped up and basically incoherent I remained in a land somewhere between reality and who knows? I do know that after Ray had left I felt someone sitting down and then a cuddling into my legs, but that’s another story.

We decided on a bath, detoxing again, but with added special things Ray thought up. He helped me to the main bathroom, (when we build I’m having a bath in the en suite!) and the most beautiful sight met my eyes. My special bath salts, lavender-scented had been liberally placed in the bath, extra Epsom salts, my coconut body wash, coconut scented body cream, candles, my bath pillow and my iPod. I could have cried. It was exquisite – and I forget to get a photo so this will have to do…

How can something so wonderful be so painful? Getting in and lying back caused another loud groan, but I wasn’t going to let it stop me. (Note to self – larger bath needed in our en suite). It was hot, as it needed to be and as I felt the warmth slowly seeping into my body, I felt a wonderful feeling enveloping me. I got my iPod and some meditation music and I was left in peaceful silence.

I came back to myself as the water lost its heat but over an hour had passed and I was a wrinkled prune – almost. Helped out and dried off and then the final surprise, the beautiful coconut butter lotion… He carefully and slowly rubbed it in from my toes to my neck and down my back. I had the most incredible massage of my back. His magical fingers caressed the painful knots and tender spots and relaxed the rest of my back. I was covered from head to toe with lotion and I felt amazing. Every muscle had turned to jelly.

Helping me dress and back upstairs we had a beautiful cup of tea.

I realised how lucky I was. I found in one inexplicable gift from the Universe, my soul mate who is my husband, my lover and my best friend. The pain notwithstanding, I realise I’m so darned lucky. To be loved and accepted by such a wonderful man, someone who not only stands by me, but helps me through my nightmare is a rare blessing. I don’t make it easy on him at times and my guilt becomes another torment. I feel stuck in this limbo, yet supported by a magical earth angel.

What more can I say? Love is beautiful and found in unexpected place and at unusual times. Enjoy it anytime you can.

#My Husband, #My Lover, #My Friend

image from 2guysphoto.wordpress.com

I feel my love flowing to all my friends out here, and to all the people everywhere. Love will eventually change our world. It is too great to ignore forever.

Blessings and love to all.

Susan x

© Susan Jamieson  2014

~

For the Love of My Life and for the Love of Your Lives, whoever they may be.

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#The Portal of the Standing Stones

callanish-standing-stones-scotland                                     Image from Pinterest

The Portal of the Standing Stones

.

Silently

She slips from between warm sheets

Quietly

She tip toes towards the door

Noiselessly

She slips through the timber door

To small whispers

Of her dress as she hurries by

Mist

Trickles from her ruby lips

As the chill air envelops her form

Moonlight

Filters softly through the trees

As she hurriedly passes along

The narrow path

Made by countless feet

Towards the eerie moors

Shadows

Mockingly shiver and shake

As she rushes by

Wreathed with mist

They appear grotesquely misshapen

Their branches seeming

To reach for her slender form

Silver moonlight

Beckons her onwards

Through the twisted trees

Suddenly

The open expanse of moorland

Beckons her frantic footsteps

Glistening brightly on the dewy grass

Moonlight

Guiding her path

She trembles

Involuntary and

Incessant

As chill fingers wriggle along her spine

Ahead

The proud shadows of the Standing Stones

Behind

The waving branches of Spanish Moss covered trees

Forward and the future

Unknown to be sure

Backwards and despair

With a man unknown

Chosen as husband, but not by she

Soft pearlescent moonlight

Shines soothingly amidst the stones

Suddenly

A dark form moves

From beside the tallest stone

The form in ghostly moonlight

Becomes the figure of a man

Dark as night

His clothing hides

His presence from the unwary

Reaching his side they blend together

Two dark shapes become one

Strong arms enfold her slender red form

As they carefully walk widdershins

Round the Standing Stones

A Pause

A glance

Each looking deeply into the others eyes

A tender smile shared

A quick kiss

And hand in hand

They walk through the arch

Of the tallest Standing Stone

One moment of this world

The next

Together in another place

No-one knows

Safe together,

Loves sweet embrace

Protects them for all time.

The Portal of the Standing Stones.

#The Portal of the Standing Stones

image from desktopnexus

Will you walk through the Standing Stones?

Bless  Susan x

© Susan Jamieson 2014

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